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At 12 years old tiny Kenadie Jourdin-Bromley stands at just 39.5in tall and weighs the same as a 2-year-old.

The bubbly schoolgirl has defied doctors since the day she was born, weighing just 2.5lb and 11in from head to toe.

Kenadie at the age of 1

Kenadie at the age of 1

Kenadie’s mum, Brianne Jourdin, 36, was told her daughter wouldn’t survive more than a few days.

However, despite having learning difficulties and fragile, thin bones, Kenadie plays hockey, swims, and functions in school.

At 8 months Kenadie was diagnosed with Primordial Dwarfism – a condition causing underdevelopment of limbs, which affects about 100 people worldwide.

Brianne, a funeral celebrant, says: ‘Most parents don’t have to imagine their kid not living past whatever age but it’s a reality for us that we will probably lose her.

“We baptised her right away because we were told that we should just bring her home to die. It was like mourning – the idea of all of the life that you imagined for your child has suddenly been taken away.’

Brianne knows that time with Kenadie is so precious

Brianne knows that time with Kenadie is so precious

However, in spite of her doctor’s grim prognosis, Kenadie is thriving today in a mainstream classroom with other children her age.

‘She’s kind-hearted, she is loving and wants to share everything with everyone,’ says Brianne. ‘She is feisty, determined and independent.’

Kenadie wears an infant size 7 shoe and weighs just 23.5lb – wearing clothes fit for a toddler.

She has a busy social life and takes skating classes, swimming lessons, and plays with friends after school.

‘It makes me so proud to see her in these activities it makes me cry,’ says Brianne. ‘I have cried so many times when she is on the skating rink, everything she does, I cry.’

But she also faces some serious medical threats as those suffering the condition are prone to fragile and thin bones. She also faces the danger of developing scoliosis or an aneurysm.

A 12-year-old friend towers over 39in Kenadie

A 12-year-old friend towers over 39in Kenadie

‘It’s a reality we’ll lose her – I lose my breath for a moment thinking about it,’ says Brianne.

‘My hope for the future for Kenadie is just that she is happy and that she finds things that make her happy and make her smile.’